Privacy Policy

Last up-dated: May 12th, 2015

Introduction

This Privacy Policy has been created to inform you of the practices of Genzyme Europe B.V. (“Genzyme”, “we” or “us”), belonging to the Sanofi Group, regarding the collection, use, and disclosure of Personal Data (as defined below) via pompe-disease.eu (the “Site”).

By “Personal Data” we mean any information relating to an identified or identifiable natural person, as further defined in the Dutch Data Protection Act (Wet van 6 juli 2000, houdende regels inzake de bescherming van persoonsgegevens).

Please be sure to read entirely this Privacy Policy before using the Site or submitting Personal Data. Your use of the Site is subject to this Privacy Policy and the Site’s Terms of Use.

We may change or update all or parts of this Privacy Policy at any time and without notice. Therefore, please check this Privacy Policy regularly for updates. The date of the last up-date is indicated above.

Collection and use of personal data by Genzyme

By making use of the “Contact Us” option on the Site or contacting our Data Privacy Officer (see Section 4), you accept to provide us with Personal Data (such as your name, address, telephone number and email address). We will use this Personal Data only for contacting you and providing the information that you have requested, including for follow up on adverse events of which we may become aware during the monitoring of the user comments’. It will only be retained as long as necessary for these purposes.

Cookies

This Site makes use “cookies” to optimize the functionality of the Site and enhance your user experience. Review our Cookie Policy.

Your rights

You have the right to access, rectify and delete your Personal Data. In order to exercise this right, or if you have any questions, comments or concerns about this Privacy Policy, please contact our Data Privacy Officer.